Tuesday, 17 September 2013

The Sept 17 Tait Debate: Teenagers perform home care for mother when workers fail to show up

Susan Beaudoin





Susan Beaudion is a proud mother of two teenagers and she wants to care for them and give them as many opportunities as she can. But it’s been very hard to do that lately and because Susan needs her kids to help with when home care workers don’t arrive for scheduled visits: her teenagers  help her getting dressed and helping her onto the toilet. That’s the reality for the 43-year-old woman who has had multiple sclerosis for 23 years and uses a wheelchair. Susan is supposed to get help from WeCare Health Services four times a day to help her get up in the morning, dressed and go to bed in her Beaumont home.

But ever since Aug. 1 when We Care signed a new contract with Alberta Health Services Susan has not had home care workers show up for several shifts. On Monday night her scheduled help did not show up and she had to put herself to bed. Other times she relies on family and friends for help. “Any transfers to the toilet, or meals were done by my kids who are teenagers,” she says of a recent Sunday when her help didn’t show. “But they should not have sole responsibility of their mother's care. They helped me to get into bed that night.”

Susan says the problems started when AHS changed the We Care contract. Since Aug. 1, We Care home care workers are not being fully paid for mileage for visits in non-Edmonton towns. We Care employees now have to pay for a significant portion of operation a vehicle out of their own pocket. “Before the August cutbacks I had three regular homecare workers that did above and beyond what was needed,” says Susan. “They became my friends and they treated me with dignity and respect. They have left because they could not afford to stay. They had to find other jobs because they had bills to pay too. They all loved their jobs before the cutbacks.”

We e-mailed Don Fraser in the Edmonton We Care office twice for him to comment on the missed visits. E-mails were not responded to. Mr. Fraser is welcome to respond at the end of this blog post.

Susan says sometimes the We Care office calls her to say nobody comes. Sometimes not. And that leads to confusion: One day Susan was called and said nobody would be filling the shift. Then, someone did arrive 30 minutes and helped her but nobody came for the rest of the day.


Susan says it is very mentally taxing just not knowing who is coming and when. “I am exhausted! Trying to always try to cover for the lack of care I am receiving. Trying to keep a house going with minimal care when I receive it.  This has totally affected my plans because I need to have my friends and family stop just being family and friends to become being caregivers.  We can't have fun and socialize but now they have to help me, too.”

Susan continues: “My home does not feel like a home with complete strangers coming in and out. Daily it is changing. Having the same caregivers come regular is so important because you form a trust with that person. It takes time to tell them (someone new) and showing them, and then in return receive minimal care. It is like asking a complete stranger to do something personal for you, (and) you don't want to.”

Susan has reported the missed visits to her case manager. Her case manager is upset with the situation and has recorded the information. “I am hoping that more people that speak out that this will be rectified. I think they (We Care) are going to have to pay their staff better which includes travel especially outside the city,” he says. “I am feeling so frustrated with this that I don't know what else to say. I guess before I felt like a contributing person in society and now I feel like I am trying to exist.”



(Cam Tait is a semi-retired journalist who has cerebral palsy and uses home care in Edmonton)


Keep the conversation going by clicking here 

Friday, 13 September 2013

The Sept. 13 Tait Debate: A sentimental journey in a '72 Cutlass Supreme




When Garry Meyer emailed me Wednesday to say he would be by Thursday morning to pick me up in his 1972 convertible Cutlass Supreme, my reaction was “Yeah, yeah. Sure, sure.” I’ve known Garry for years as a great master of ceremonies for events and a great practical joker. Nineteen-seventy-two Cutlass? A convertible? Bring on the pictures. But then, just after 9 a.m., Garry was in front of my place, adjusting the top in a brown ’72 Cutlass Supreme. “We’ll take the top down for the ride back,” Garry said.

All summer long Garry and I have been planning a trip from Edmonton to Camrose to visit a mutual friend. Thursday was the day. Away we went on a warm fall morning where I learned about the brown Cutlass. When I got in one look at the dashboard took me back to my teenage years: an AM radio with a needle indicating the station frequency, little metal levers for the heat, long rods on the passenger side for air vents on the side of the vehicle and laps belts minus the shoulder harness. We weren’t even five minutes away from my place when people started honking horns and flashing the thumbs up. People loved see the car. “I once had someone leave me a note on the windshield saying if I ever wanted to sell it call — and there was a woman’s phone number attached to it,” says Garry. Another time he ran into the wife of the car’s original owner in a Sherwood Park parking lot where she thanked Garry for taking such good care of the car.

But he has no plans to sell the car. In fact, he restored the vehicle twice, the last being when he put a 350 Rocket under the hood. He loves driving it and has wheeled it down to Montana.

Garry hasn’t named given the car a name: he doesn’t have to. Garry bought the car from  Stedelbauer Chevrolet on July 13, 1983 the day before his mother went to the Misercordia Hospital for a routine cancer check-up. The next day Mrs. Meyer passed away. “On both sides of the car I have HMM engraved,” Garry says of his mother’s initials.

Wednesday, 11 September 2013

The Sept. 11 Tait Debate that's actually a rant (please click here for more)


I knew the new cancellation policy the Disabled Adult Transit Service would smack me. I just didn’t know how hard it would smack me until Wednesday morning. DATS is asking users to cancel their rides two hours before their pick-up. Now let me share my Wednesday morning: at 10:11 a.m. I received an e-mail from the person I was going to meet for lunch. He had to cancel. Out of respect for DATS I called and cancelled my ride, scheduled for 10:45 a.m. The operator on the telephone said I would be marked a no-show because I did not give two hours notice. My response was “That’s not fair because my schedule changed and I could not help it.” The operator countered by saying I should call DATS Community Relations to discuss and better plan my trips.

I am not happy.

I could have gone for lunch myself, I suppose. But that really didn’t appeal to me. I am a busy person and there are many other things I need to get done today. Even though lunch would have been nice, I can use the time to get my work done.  Makes sense, doesn’t it? Yet, I get my knuckles slapped and am told I need to plan better. How? How does DATS expect people plan for the unexpected?

Would have DATS rather me not call and cancel, some 32 minutes before my trip, and have to driver show up in front of my door and ring my bell, only to me told I wasn’t taking the trip? I’ll take that debate any day.

But what really frustrated is the tone DATS has: that users have change of plans. That’s one of the byproducts of being contributing to the community and, most importantly, making connections. But to be reprimanded and to be felt like you have committed a cardinal sin is, simply, wrong. It also discourages independence and could lead to some folks wondering why they should even bother to make plans when DATS shakes their finger at them.

I don’t think that’s very fair.

And if you have any experiences like this — or know of someone who has — please share your at the bottom of this post or click here.

Tuesday, 10 September 2013

The Sept. 10 Tait Debate: Thirty home care visits missed in Leduc over the weekend (PLEASE CLICK HERE FOR MORE)






More than 30 people scheduled for home care services in Leduc did not have their shifts covered Sunday. WeCare Home Health Services employee  Cindy Mielke posted the situation on Facebook Sunday before she said she became aware of the situation at 8 a.m. Mielke who has 16 years of experience, was in the Leduc WeCare office when she was told the shifts were not covered by staff. “It’s very unusual,” she said through an email exchange. “I used to be a co-odinator with WeCare. If the weekend and nightly shifts were not booked we stayed late and got them  booked.”

But with Alberta Health Services re-vamping home care recently, staff are leaving the positions. Wages have been cut as well as vehicle allowances for staff. Mielke has seen the damage first-hand. One of her regular clients recently went an entire weekend without getting help for a bowel routine. “I got a phone call at 10:15 one Saturday morning asking if I would go but I was already in Red Deer for the weekend.  WeCare couldn’t fill her shifts,” she says. Two days later Mielke went into work with the woman and she says it was a disaster. “Because she went all weekend without she became very incontinent in her bed and she was deeply embarrassed. Poor woman,” she says. Mielke has also heard of people not getting a bath for a month because of shifts not being filled.

There’s another alarming side of this story: the mental anguish of people with disability being uncertain of personal care attendants not coming. Wondering if you will get help or not can grind a person down. It can dampen one’s confidence to live in the community … independently. The sad thing here is the provincial government is not paying much respect to personal care attendants. Mielke says she’s feeling like a newspaper carrier, rather than someone who provides needed personal care. “AHS needs to understand the rights of the ones who are disabled and or elderly.  I help people with their daily living. I hope I give them dignity and self-respect,” she says. “People that are going through issues, whether it’s having a hard time growing old and all the complications that go with it. Or, ones suffering from disabilities and all the things they go through in a daily manner.”

Wages show respect. But Mielke doesn’t see it. She runs her vehicle for 60 cents per kilometre but is paid  40 cents per kilometre, one way, when she travels to help people in rural Alberta. That means she dips into her own pocket. Clearly, it isn’t worth her while and says, after calculations at $17 per hour, she’s making less than minimum wage. “I’d be making more at Wal-Mart where my car is parked for eight hours,” she says.

And that’s a real shame. Because it takes someone special with understanding, patience and a giant heart to be a personal care attendant.
“I think it’s the love of money, prestige and power,” Mielke says of the current dimise of home care in Alberta. “Until they (AHS) find themselves in a similar position, they really don’t give a damn.”

Front line home care workers need to be paid more. They have to be: otherwise more visits are going to be missed. There were over 30 visits missed Sunday. And, that’s 30 too many.

(Cam Tait has cerebral palsy and uses home care in Edmonton)


KEEP THE CONVERSATION ROLLING BY CLICKING HERE

Monday, 9 September 2013

The Sept. 9 Tait Debate: Steve Hogle once again has the look of being a rookie


Steve Hogle
On a warm evening in June of 1973 a dark curly-haired 13-year-old sat on the end of the baseball bench along the third baseline of Jubilee Park in west Edmonton. He was a rookie. Didn’t play much. But he was eager, ready to learn and had a confident — although not cocky — attitude, which clearly showed he was ready for anything. That’s was my introduction to Steve Hogle. And that same image, four decades old this summer, replayed itself last Thursday: Steve was wearing a suit and tie, replacing the red and white baseball uniform, sitting on the end of a table, looking poised and ready. Once again, he’s a rookie — this time as president of the Western Hockey League Saskatoon Blades.




I spoke to Steve about 10 days back. He had taken a leave from the Edmonton Oilers as vice-president of communications. Not looking for a change, he said a wonderful opportunity surfaced. He needed time away to think about it. The reporter in me was begging to ask the question of what that might be; the friendship in me whispered “Nah, leave it alone. He won’t tell you anyway.” So I did. Steve did, however, grant me this: “It’s hockey related.” Edmonton Journal sportswriter Jim Matheson wrote a story Wednesday about the Saskatoon Blade sale from Jack Brodisky to Edmonton car dealership owner Mike Preistner. The president of the team, Matty wrote, would be my old friend Steve, a long-time friend of Preistner’s. The day after the story ran in The Journal, the Blades new ownership was introduced. Sure enough. Steve was there in his new role as president.

(Please click here for Steve's interview Friday on CTV Morning Live.)


Over the years, Steve and I have bumped into each other countless times. He father Bruce was a tremendous television news reporter and then manager. Steve followed his dad’s legacy, working his way up to director of news and public affairs with CTV Edmonton. He left television to become vice-president of communications for the Alberta
Bruce Hogle
Research Council in 2007. Then he joined long-time friend and Oiler owner Daryl Katz in a communications role during negotiations between the team and the city on a new downtown arena. After the arena deal was secure, Steve turned his talents to the Oilers, overseeing broadcast operations and website content.

Whenever we talked hockey always entered the conversation. He often fed me stories of up and coming minor hockey players in Edmonton to write about when I was an Edmonton Journal sportswriter. Steve loves to see people succeed. He’s also been a great friend to me. When I took a buy-out from The Journal in 2012 he was the first person to call and see how I was. He told me the best my part of my life, while unknown, was just around the corner.

Now, it’s my turn to return the favor as Steve enters his new chapter in life. Given his eagerness in his eyes and how he relates to people I have no doubt Steve Hogle will have super Saskatoon success.



Saturday, 7 September 2013

The Sept. 7 Tait Debate: An invitation for ice cream with my grandson to those who think we received preferential treatment (CLICK FOR MORE)


Our grandson Nicholas in our living room (AFTER SCHOOL)
Just a little after 7:30 a.m. weekdays my day begins when my 10-year-old grandson Nicholas walks into our bedroom door and leaps on to our bed. First, he gives my wife Joan a big hug to start the morning and then rolls over to my side. “’Morning, Papa,” Nicholas says, often punctuated by a long yawn. I pull myself out of bed, get into my wheelchair and watch cartoons while Joan cooks and gives him breakfast. It has been our way of life  for five months now after Nicholas’ mother passed away from cancer. Our son Darren drops him off in the morning.  Joan drives Nicholas to school in the morning, takes him lunch and then picks him up in the afternoon. Nothing was going to stop Joan and I from providing the best environment for Nicholas and a time when he needed it the most.

But we came very close to losing that. Very close. In June Alberta Health Services decided to re-vamp home care by dismantling many successful programs. I have cerebral palsy and require assistance in bathing, dressing and other things. Since 1997 Joan and I have lived in a condominium with 24-hour home care. Under the brilliant leadership of founder Larry Pempeit who formed Creekside Support Services — a non-profit group — 14 people with physical disabilities in the Creekside complex live independently … all because of home care. That wasn’t good enough, it seemed for AHS. In fact, they told us a new homecare provider would be coming in, with new staff, who, incidentally, might be on-site 24 hours a day like we had.

It scared me. I was afraid I might have to move into a nursing home. Nicholas wasn’t ready for that, I said to myself. It would also mean I could no longer be the grandfather I wanted to be. So we fought like hell. The day before we met AHS officials and were told of the changes, my neighbor Heidi Janz and I had a chat.
Alison Redford
What if, we wondered, we asked Alberta premier Alison Redford for coffee to share our story? So we did on this very blog. (Have a look here.) The day after I received an e-mail from Redford’s press aide Neala Barton saying our invitation had been accepted. We met Redford five days later and within 48 hours our meeting, the AHS decision was reversed. We still have our homecare program intact.

Last week Creekside Support Services came under fire in a report (click here) on how the home care contracts were handed out. One unnamed company is claiming we got preferential treatment because we met with Redford, causing Calgary Herald columnist Don Braid to chime in on the debate.
Hedi Janz

I find this very petty. So does my friend Heidi who replied Friday with this. One has to wonder if this company even asked for a meeting. Funny what happens when a requests are made ... I would suspect the got in a huff because the reversal had a huge financial impact on them.  For me, it was personal. It was about my family, and it was about having existing services in place so I can be the best husband, father and grandfather I can be. It’s about the circle of care: because I am cared for, I can care for others.

Homecare isn’t just about dollars and cents. It’s about empowering people to be the best they can be. So rather than inviting this unnamed company for coffee, I’m inviting them for ice cream with Nicholas and I. They can ask Nicholas how much fun it is jumping on Papa every morning to wake him up  — and then draw their own conclusions.

Nicholas in our living room playing trains

Friday, 6 September 2013

Sept. 6 Tait Debate: Guest blogger Dr. Heidi Janz on home care report (click here for more)


How Does Granting a Plea for Dialogue to Save Our Independence Become “Preferential Treatment”?



by Dr. Heidi Janz

In a Calgary Herald column which appeared on September 4, 2013, Don Braid reports:

In a long report on clumsy and insensitive AHS handling of new homecare contracts, there’s a startling line on page 88 that instantly rang political gongs on Wednesday.

Some homecare providers vying for contracts, the document says, “were upset that other service providers that had approached the Premier received preferential treatment and in their view this option should be available to other providers.”

The wider finding of the report, ordered up by Health Minister Fred Horne, is that Alberta Health Services kind of forgot about the people who need home care when it started awarding big contracts to private national companies.

That jolted AHS and led to a reshuffling of contracts, some of them away from big outfits like Ontario’s Bayshore, and back to worthy non-profits that have served Albertans for decades.

But the full report didn’t come to light until Wednesday … And it contained that explosive suggestion — repeated without elaboration — that Premier Alison Redford was somehow playing favourites behind the scenes.

Redford herself didn’t comment Wednesday. But her press aide, Neala Barton, says the only relevant meeting on Redford’s schedule was with an Edmonton co-op agency in June.           

This was well publicized at the time, mainly because one of the players is the remarkable Cam Tait, blogger, and longtime Edmonton Journal writer who has been afflicted with cerebral palsy all his life.

Now, in the interests of full  disclosure, let me confess that it was I, along  with friends and fellow Creekside Support Services users Tait and founder Larry Pempeit,  who conspired to unduly influence Premier Redford to reverse a wrong-headed  decision by AHS to blow up our user-run homecare services, and hand over all control of our personal care—and, with it, practically all control over our lives—to a big-box, for-profit homecare provider. For anyone interested in the facts of what such an arbitrary change in homecare provider would have meant for us, here they are:

·      No longer were we 14 Creekside users with physical disabilities to have any say at all in where, when, or by whom our personal care was provided.
·      We were going to lose all of our current health care aides—many of whom had worked with us for 10 years or more.
·      We would no longer be able to receive personal care services outside our home. For some of us, this would mean no longer being able to go to school or work.
·      According to the representatives of Alberta Health Services  Homecare, with whom we met just five days before we met with Premier Redford, there was no guarantee that the new service provider would be able to provide the 24/7 care that many of us require, and currently receive.

If any of you are surprised by any of these facts, you’re in good company—so was Premier Redford. My own sense is that it was being presented with the real effects that this decision was going to have on real people that affected the reversal of this decision.

So, to those unnamed applicants accusing us of unduly influencing the Premier, I would simply ask this: Would the decision on who was awarded Homecare contracts affect any aspect of your personal life, other than perhaps the size of your bank account? Would it affect when (or if) you get  up in the morning?  When (or if) you can use the bathroom? Who cleans you after you use the bathroom?

If you’ve answered “yes”  to any of the preceding questions, we owe you an apology.

If not, I’d  say, you owe us one.






To keep the conversation going please click here

Wednesday, 4 September 2013

The September 4, 2013 Tait Debate: Q and A with DATS director Deanna Crozier



Deanna Crozier, director of the Disabled Adult Transit Service, joined us on a Q and A on the new two-hour cancellation policy.


1)  Were you surprised by the feedback you received on the two-hour cancellation policy?
Crozier: "If DATS users, caregivers, and families have feedback on this matter, it surprises me they didn’t contact DATS directly. To date, we have received only 25 non-favourable calls to DATS Community Relations, e mails and correspondence. In addition, some of the e mails and contacts were forwarded to us from other sources. I replied to all e mails and written correspondence and advised I was available to meet. To date, I’ve had one call back.

In the DATS Customer Care Centre, we have had questions, clarifications, and many scenarios posed as well as comments like “it’s about time”. Many users challenge us to be more efficient. The introduction of the 2 hour cancellation notice is one way we’re addressing this challenge.

Customer feedback comes to us in a variety of forms. In addition to our standard tools, we now have the opportunity to engage our customers through social media. A challenge for us is the immediacy and “free flowing” aspect of social media. We need to ensure our responses are timely but also accurate.  This poses a communication challenge that we have been and will continue to pursue with our City communication liaisons.

2)     DATS users were not asked for their input on this. Why?
Crozier: "DATS stakeholders were asked for their input.

"We use the DATS Advisory Group (DAG) to provide ongoing input in the planning and operation of DATS – this was discussed at their meetings. We also send items for the Edmonton Transit System Advisory Board’s Manager’s Report – this topic was included twice.

The DATS Newsletter is a key communication tool for us. Bi – monthly newsletters are distributed in print (regular and large) and electronic formats as well as on CD’s.. We solicit customer feedback on items included in the newsletters and include our contact info in every issue. As noted above, we didn’t receive much input on this issue. As well, we issued a specific Customer Bulletin on this issue and solicited feedback - we received minimal response.

3)As an user I was somewhat disappointed in the explanation in the DATS newsletter on working late and feel comparing it to a car-pool and, in fact, I don't understand that. How does a car pool and a public-funded transportation system draw a parallel each other?

Crozier: “Both are a pre-arranged ride and if it’s frequent, some of our customers have worked with their employers to make it more of a formal arrangement.”

4)    Do you see this as perhaps an opportunity to build a better relationship of understanding between DATS users and administration?
Crozier: “Overall, we have a good relationship as evidenced by the annual customer satisfaction surveys. However we believe any and all contact with customers is an opportunity to build better relationships.”

5)Do you think if there would have been more consultation with users there might have been a buy-in from customers?

Crozier: “Based on customer reaction when we introduced the change, there haven’t been customer issues. To date, we’re pleased with customer buy in.”
6)   How was the time of 7 a.m. determined for the no-show policy not to be in effected? Were users asked?

Crozier: “It isn’t possible to provide 2 hours notice for trips before 7 am week-days and 8 am week-ends and Stat Holidays – staff aren’t in until 5 week-days and 6 week-ends and holidays to accept cancels.”


7)   When and how do you think you will see the two-hour policy be beneficial to DATS?
Crozier: “This change is designed to benefit both customers and DATS Administration. This allows DATS to be more efficient with the yearly budget approved by City Council and maintain/improve service to our customers. For example:

·    More same day customer trips accommodated and perhaps at different time periods;
·    Better (and more) accommodation for “ready early” customer requests;
·    Improved on-time performance for customer trips and perhaps at different time periods.

8)  DATS has said the city is growing. Are there plans for a budget increase to address the city's growth?
Crozier: “The growth to the peripheries of the city poses scheduling efficiency issues. Continuous improvement in scheduling has been a focus for quite some time. This additional cancellation notice will help DATS be more efficient in scheduling and service delivery.

Our strategy is to maintain our current budget. One of our goals is to accommodate increased demand for DATS by assisting customers to make better use of regular ETS bus and LRT.”

9)  Please list three things why you think the two-hour cancellation policy will assist DATS in the next three years?

Same as #7 above:

Crozier:
·    More same day customer trips accommodated and perhaps at different time periods;
·    Better (and more) accommodation for “ready early” customer requests;
·    Improved on-time performance for customer trips and perhaps at different time periods.


KEEP THE CONVERSATION GOING BY CLICKING HERE

Tuesday, 3 September 2013

DATS rolls out new two-hour cancellation policy today; user Brenda Lewis responds


This is the day the Disabled Adult Transportation System rolls out their new two-hour cancellation policy. I think we have to keep an eye on this, looking for the good and the not so good it will bring. If you are a DATS user, please email your thoughts and experiences on the changes here.

In the DATS newsletter, the changes were explained Brenda Lewis shares her opinions one the answers from DATS.


       DATS newsletter question: What about medical appointments? What if they are running late?       DATS answer: When you book your appointment, let them know you will be traveling on DATS and confirm how much time you will need for your appointment. Please allow enough time for your appointment before your return trip. If you finish up early, just call and let us know you are ready early. 
       BRENDA LEWIS:  “Asking how long an appointment might be is unreliable to
say the least.  Never would the doctor be consulted about the length of an appointment, so a nurse or receptionist would not be qualified to answer
that question.
       The question should be; what happens when DATS gets me there late?

       Why are same day trips becoming more of a priority then trips dutifully made one to three days in advance? Would I fare better booking
same days all the time if same day trips are a higher priority than previously booked trips! Is there incentive?
  DATS newsletter question: What if roads are bad and I arrive late and can't use my return trip?
DATS Answer: Late cancellations are not recorded on your file if it is because DATS was late getting you to your destination.  
       BRENDA: “That's the least they can do, and I do mean the least!! Quite the olive branch!
        Raise your hand if you think bad roads are the only reason DATS would get you to your destination late??”

  DATS question: What if I can’t make my early morning trip?
  DATS answer: For trips before 7 a.m. weekdays and before 8 a.m. weekends, the current cancellation notice will still apply.

       BRENDA: “This rule should be moved from 7 am to 10 am. Many people are not awake or, if needing assistance getting out of bed, before 7 or 8 am.  
      
       If you are ready early to go home, you can phone to see if they can pick you up early.  What if we get to our destination late?  Will we be able
to be picked up later to accomplish what we went to do or have to call it a write off and a total waste of a trip? DATS doesn't want their time wasted
but mine is up for grabs! Is my time worth less than theirs?

       This new rule might not be as hotly contested if it hadn't been preceded by other rule changes that put more limits on our independence.
Booking three days in advance as opposed to two. Some people like it, some don't.  Life is not cut and dried so please tell me how well I can make a
booking(3 days ahead) when I don't know when I will get there???  Allow yourself 90 minutes to get somewhere whether it's ten blocks away or clear
across the whole city?  
      
       In the summer months, during decent weather, I could decide to cancel DATS and take the regular ETS, (which I thought was highly encouraged, by the way). But with our weather changes, even an hour would be better for feeling confident the weather will hold if I cancel!!
      
       It might look good on paper but taking a trip off one driver's schedule but adding a new trip to someone else's schedule results in someone
getting behind.  

Reading between the lines, I come away with: if DATS is not working for you, you can always twist your daily life schedule to fit theirs.  I am not
saying I'm demanding or expecting perfection from DATS or any other public works and I'm not saying I'm not grateful for their service. But I guarantee
I wouldn't put these thoughts together if I didn't feel very disrespected and fairly sure that this change will restrict my independence even more.
I'm all for compromise and respecting rules but only if they are just and make sense. We were not consulted.”


COMING TUESDAY: A Q and A with DATS director Deanna Crozier

Cam 'n Eggs and a good reminder

Good morning and let's be careful out there!

Monday, 26 August 2013

The Monday Camburger: New DATS cancellation policy provides wonderful opportunity



A week from now the Disabled Adult Transportation System is bringing a new policy where you have to cancel two hours in advance or you get hate mail. And if you get enough hate mail, you could be suspended from service. So, as DATS user, after much deliberation I have decided how I am going to handle it. I’m going to ignore it. Pretend it isn’t even there. I am a busy person and if I can’t cancel within the said period, bring the hate letters on. I really don’t care if I get suspended.

What bothers me is the way this was handled. DATS didn’t ask users at all for their input. I find that very interesting given today’s information age. They did bend a bit, saying those cancellations up until 7 a.m. will not go on the hate mail list. I don’t think that’s good enough. If DATS administration would have asked users, they would know many things can happen in the morning: personal care aides may be late, or not show up; equipment such as wheelchairs and lifts may falter; accidents in the home might happen and other things. Many of these things happen after 7 a.m. Respectfully, I think the exemption time for the two-hour policy should be extended to 10 a.m.

But nobody asked. Nobody from DATS did their homework. So despite 550 names on a petition the two-hour policy swings into affect next week.  Bring it on, I say. Because I think this is a great opportunity for people with disabilities to make another profound statement that cookie cutter philosophy without consulting consumers does not work.


Friday, 23 August 2013

Tea with Tait .... on the beach!

If you can't make it to the lake tonight we'll bring it to you!



 Tait Talk title sponsors are

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The Friday Camburger: How does que-jumping build a caring culture?



The media around these parts have many stories and angles covered about the que-jumping debate in the province’s health system following the release of a report. You can find the details, stats, figures, graphs — everything you wanted and more — in those reports. I’m not going to debate the report today, but rather ask a question: what kind of a caring culture does que-jumping create?

We need to challenge ourselves to be mindful of Albertans with severe health issues should be a priority. As a province we have a responsibility in that regard. We need to ensure all Albertans that when they go to get medical help they will get it in a timely manner. Part of the recovery process in any illness starts the minute a physician starts listening to a patient. That hope is priceless.

It’s no secret: the Alberta family is expanding. We need to care for one another in new ways and be compassionate and understanding as our population grows. Building an unselfish culture is crucial as we move forward into the future: putting others first. I really don’t see how que-jumping will increase Albertan’s capacity to care for eachother.

Wednesday, 21 August 2013

The Camburger — Let's get hugging, Edmonton




We need volunteer huggers in Edmonton, stationed on the High Level Bridge. A few on the north side and some on the south side. Because sometimes a hug can lead to conversation, which could be life-saving. Edmonton city councillors voted Tuesday to look at options in securing the High Level Bridge to bring down the number of suicides. There were 14 deaths last year around the bridge area: 14 too many. And 41 reported suicide attempts between 2011 and 2013. Forty-one too many.

I think people who find themselves in such a state of thinking about ending their lives are going to find their way on to the bridge, no matter what. But if there were folks around watching, looking for signs of distress we might be on to something. What if the city and The Support Network got together and trained volunteers to help?

There could be rewarding in so many ways. For volunteers it would provide a way for them to reach out in ways they might not even know they had. Maybe just an hour at a time. For people in need, a caring face can do so much. Sometimes, just seeing someone can comfort us. And a welcoming hug could change someone’s life. What do you think, Edmonton?

Tuesday, 20 August 2013

Wednesday's Cam 'n Eggs with Grace and Ish Naboulsi, and Craig Styles

GOOD MORNING!
    Grace and Ish Naboulsi, right, with the help of longtime friend Craig Styles, raised $282,000 to thank the University Hospital for helping Grace with a heart ailment.  PHOTO by Nick Lees




Tea With Tait — The Gretzky Tales - Part V — "Have one for me"


 (It's been fun, sharing my stories with Wayne Gretzky over the past few days. Here's the last instalment.)

Wayne as coach

I see Wayne the odd time now when he comes to Edmonton.
One of the most amazing things to me about Wayne is how he always encourages people to look to the future.
Whenever we had a chat at the morning skate of a game, he would end by saying: “You’re coming to the game tonight, right? I’ll see you after the game.”
And he would. It wouldn’t be for very long because he had a plane to catch. But right before he left the rink, he would  always say “I’ll find you when we are in town next.”
And he always did. His time was so restricted he often did not have time for a quick hand shake and hello. But he always did that.
I’ll never forget in December of 2008 when the Phoenix Coyotees were in Edmonton to play the Edmonton Oilers. I was on the bottom of Rexall Place near the Phoenix dressing room and watched the team walk under the stands on to the ice. With his hands in his pocket, Wayne followed the team out and, minutes before the game, probably had a million thoughts. He saw me, stopped and shook my hand.
“Cam, how are you? Everything OK?” he asked. “It’s game time but God bless.”
In the winter of 2002, Kevin Lowe had me phone him before every hockey game Canada played at the Salt Lake Winter Olympics. (Wayne and Kevin were part of the management team.) The night before Canada met the Americans in the gold medal game, I made my call. Kevin took it and said someone wanted to say hello.
Joey Moss
One of Wayne’s special friends is Joe Moss, who has Downs Syndrome and can be difficult to understand at times.
Kevin handed Wayne his cell phone.
“Hi Gretz. How are you?” I asked when I recognized his voice.
“Joey!” Wayne exclaimed, thinking I was Moss. “How nice of  you to call.”
And, he was serious.
“Sorry, Gretz. It’s Tait.”
There was a long pause at the end.
“Well, you’ve been drinking, haven’t you? Have one for me.”
Wayne, Bill Comrie, Glen Sather and myself at the Northlands in 1999 in Edmonton



PLEASE CLICK HERE FOR PREVIOUS PARTS OF THE SERIES