Vivian Ross:
I have ALS and require total physical assistance. These
supports enable me to remain in the community as a full participant, something
that would not be possible in extended care. Our Creekside staff are wonderful
caregivers who respect us and don't view us as patients.
The news about this redistribution of contractors is
absolutely terrifying. I have been left out in the dark of the decision-making
process and am very fearful. What will happen to me? These imposed changes to
our care will not merely result in the replacement of one PCA for another, but
will also lead to a restrictive, dehumanizing, lifestyle change.
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