I have ALS and require total physical assistance. These supports enable me to remain in the community as a full participant, something that would not be possible in extended care. Our Creekside staff are wonderful caregivers who respect us and don't view us as patients.
The news about this redistribution of contractors is absolutely terrifying. I have been left out in the dark of the decision-making process and am very fearful. What will happen to me? These imposed changes to our care will not merely result in the replacement of one PCA for another, but will also lead to a restrictive, dehumanizing, lifestyle change.